About NOHSG
The Northeast Ohio Hydrocephalus Support Group, Inc. (NOHSG), is a non-profit 501(c)(3). NOHSG was incorporated in April 2003 by Hilary Rossen, LISW and Stephen Dombrowski, Ph.D., Director of Clinical and Experimental Research in Neurosurgery at the Cleveland Clinic.
Our group was established to:
- Facilitate a monthly support group;
- Host our annual Run / Walk / Family Fun Day;
- Provide information and resources; and
- Contribute to research through fund raising and awareness.
The group meets one Wednesday night a month from 7:00 to 8:30 PM at the Cleveland Clinic's Independence satellite office on Rockside Rd. Past speakers included neurologists, neurosurgeons, neuropsychologists, physical therapists, child life workers and others. The group is open to new people at any time. Please contact Hilary Rossen LISW, for more information.
AnnouncementNOHSG has been selected as one of two pilot affiliate groups!
A year ago the Hydrocephalus Association sought out regional collaborators to expand their presence into local communities and to unify and amplify the voice of hydrocephalus around the country. The Northeast Ohio Hydrocephalus Support Group, Inc has been working with the Association for over a year now to develop and fund the program.
We are very excited and proud to announce that we have been selected as one of two pilot affiliate groups. As a result our group will now be known as the Hydrocephalus Association Northeast Ohio Affiliate. We believe the affiliation with the Hydrocephalus Association will leverage the benefits of both organizations and offer you a better, stronger organization with local presence and national reach.
The purpose and goals of this national support expansion effort are to provide support, education and advocacy to all those affected by hydrocephalus at a local level and to influence policy and increase awareness of Hydrocephalus nationally. We will continue to:
- Assist individuals and their families in dealing with hydrocephalus.
- Hold local group meetings to provide an opportunity for individuals and families dealing with hydrocephalus to meet, share experiences, and learn more about this condition from knowledgeable professionals and each other.
- Advance the purposes and goals of the Hydrocephalus Association through holding TEAM and other local networking and fundraising events.
- Provide a foundation for national advocacy efforts.
We hope you will continue to attend our meetings and events. If you are not currently a member of the Hydrocephalus Association we encourage you to become one. Enclosed you will find a membership form. You will be added to the Hydrocephalus Association mailing list to receive newsletters, advocacy updates and national conference notices. If you do NOT wish to be on the Association mailing list, please contact us either by email hkr0927@aol.com or phone (216) 466-1827. We look forward to continuing to provide support and resources to you as you need them.
Most sincerely,