Resources
BRAIN
Contact the Brain Resource and Information Network (BRAIN) for information on neurological disorders and research programs funded by the National Institute on Neurological Disorders and Stroke.
BRAINPO Box 5801
Bethesda, Maryland 20824
Phone: (800) 352-9424
Visit the National Institute on Neurological Disorders and Stroke (NINDS) at: http://ninds.nih.gov
NORD - National Organization of Rare Diseases
Search NORD's Databases. Read about diseases in NORD's Rare Disease Database. Find an organization in the Organizational Database. Information about NORD, its programs, special events and services can be found at www.rarediseases.org
Internet Accessible Medical Records
Access your health information whenever it is needed by you, your doctor or emergency personnel at www.followme.com
Wallet-sized CTs and MRIs
BelMed Inc., provides wallet-sized cards that are customized with six views of your CT or MRI scan on one side and critical information about your medical history on the other. The images on the card enable medical personnel to know what your ventricles should look like when your shunt is functioning properly.
For more information contact:
BelMed, Inc.2810 Glen Eagles Point
Alpharetta, GA 30005
Phone: (800 531-9614
Fax: (800) 727-6137
S*T*A*R*S Research in Shunts
S*T*A*R*S is a non-profit organization that raises awareness and funds for research to advance shunt technology and its effect on the brain.
Visit www.stars-kids.org for more information.